Where angels fear to tread

The ups and downs of life as a former hospital chaplain and rare blood cancer sufferer. I was diagnosed with MDS (Myelo Dysplastic Syndrome) in 2000. I had a bone marrow transplant in Oct 2016. Since then I’ve been living with extensive GVHD (Graft Verses Host Disease). Hope you find something that helps in these blogs.

Monday, 27 November 2017

A trying week

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Following on from my latest I’ve been having a real mixed bag of a time in many respects. I’ve had some lovely weekends with my siblings. T...

Monday, 20 November 2017

Another awful bone martow biopsy.

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So here’s my latest update. I was at Guys today for round 6 of ECP. Due to the problems with my line, my wonderful nurses had arranged for ...

Thursday, 9 November 2017

Prayer to St Jude

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I want to start this post by saying I’m ok. I wish I could say I had some good news though. Sadly my Hickman Line is still not working!Those...

Sunday, 5 November 2017

Hobson’s Choice

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My line is going several different colours. Let’s hope it works come Thurs when I have my next round of ECP. Sometimes life is a bit of a ...

Tuesday, 31 October 2017

Revenge of the Hickman Line

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So my day today was another barrel of laughs - not. The joys of living with cancer and it’s consequences. I had a light breakfast of a...

Wednesday, 25 October 2017

MDS World Awareness Day 17

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As today is the world awareness day of my rare blood cancer, I thought I should write a little blog about the realities of living with this ...

Friday, 13 October 2017

Learning to live with pain

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The following is an extract from my Facebook page on the realities of living with cancer. It was written nearly 3 years ago. 5 Feb I...

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About Me

Rebel Rev: Hi. Thanks for finding my page. I’m a medically retried Chaplain and still continue to be a Rebel Rev. My cancer journey is not straight forward and I share it in the hope it helps others.

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