Where angels fear to tread

The ups and downs of life as a former hospital chaplain and rare blood cancer sufferer. I was diagnosed with MDS (Myelo Dysplastic Syndrome) in 2000. I had a bone marrow transplant in Oct 2016. Since then I’ve been living with extensive GVHD (Graft Verses Host Disease). Hope you find something that helps in these blogs.

Tuesday, 22 January 2019

Rebel Rev is distraught

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I’m pleased to say that since being home I’ve very much enjoyed sleeping in my own bed and also appreciated some home cooked food. I feel ...

Wednesday, 16 January 2019

A 6th Hickman Line for Rebel Rev

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Hello everyone. I hope you are having a good day wherever you are. I’ve had a blessed day with visits so far from Emma, Aunty Pat, and...

Rebel Rev finds out she has 2 flu viruses

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Dear All. Today’s update which has some good news and some bad news. Firstly hope you like my Kinky Boots socks. Fun aren’t they. Thanks D...

Monday, 14 January 2019

Lung GvHD too. Oh boy!

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So here’s my update for today. My consultant has confirmed that the CT scan showed lung GvHD as well as infection. He is keen for me to co...

Friday, 11 January 2019

This is worse than chemo!

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Sorry for delayed update. Thanks for all your lovely messages. I have been through the mill this time. As you know I was admitted to h...

Saturday, 5 January 2019

Back in hospital again

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Dear friends and family, I’m sad to say that I’m back in hospital on Davidson Ward again. It’s becoming my home from home. This time I’m i...

Friday, 4 January 2019

Struck down by flu and the hidden cost of cancer

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I had my first ECP of this year today. I rang them before I set off to say I had a bit of a cold and cough. They checked I felt well enough...

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About Me

Rebel Rev: Hi. Thanks for finding my page. I’m a medically retried Chaplain and still continue to be a Rebel Rev. My cancer journey is not straight forward and I share it in the hope it helps others.

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