Where angels fear to tread

The ups and downs of life as a former hospital chaplain and rare blood cancer sufferer. I was diagnosed with MDS (Myelo Dysplastic Syndrome) in 2000. I had a bone marrow transplant in Oct 2016. Since then I’ve been living with extensive GVHD (Graft Verses Host Disease). Hope you find something that helps in these blogs.

Friday, 29 March 2019

More blocked pipes sagas

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Sorry it’s been a while since I posted an update. I’ve been gradually feeling more and more unwell. I haven’t had ECP for 6 weeks and my bod...

Tuesday, 19 March 2019

Having a bad day

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I’m feeling a bit emotional and fragile today. That’s unusual for me. As regular readers of my blog will know my Hickman Line is playing up...

Monday, 11 March 2019

10 March X4

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These pictures were taken on 10th March 4 years in a row. In the 2016 photo I was an in patient at Kings. It was a long and painful admissi...

Wednesday, 6 March 2019

Another failed Hickman Line

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This week has had its usual share of challenges. As you know from my last blog, I had my blood transfusion and very long day in hospital. T...

Thursday, 28 February 2019

Counting the hours

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Well I don’t think it could be more possible to have two such different days. Yesterday I had the pleasure of doing a 2 hour chaplaincy se...

Saturday, 23 February 2019

Robo Rev reveals the tubes

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I’ve been thinking lately about the invisible nature of so much that those of us with blood cancer or Graft Verses Host Disease endure. ...

Tuesday, 12 February 2019

Feeling the light and love

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Picked up my new bins this morning. What do you reckon? I’ve arrived at Kings. The place is heaving. Only another 50 people in front o...

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About Me

Rebel Rev: Hi. Thanks for finding my page. I’m a medically retried Chaplain and still continue to be a Rebel Rev. My cancer journey is not straight forward and I share it in the hope it helps others.

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