I also went back to ECP (extra corporeal photospheres) at Guys Cancer Centre. It was so great to see all those lovely nurses again. I missed them as well as the treatment. It’s great to be back after my enforced 3 month break.
I had a review in HOP (haematology outpatients) yesterday and things are slowly improving after stopping the sirolimus. I’ve got a bit of an appetite again and each day I feel slightly better.
I also had an appointment in urology and met the bubbly Cathy and Sheila who are the specialist nurses dealing with urodynamics. They were great and accepted that I didn’t want to be prodded and poked and have invasive tests. It’s so good to be listened to and respected. I’ve been put on yet another medication, but one that will hopefully stop me having to dash to the loo. If not it’s back to Cathy and Shelia to see what else might need to be done.
Saturday I’m back at Kings as I have an echo cardiogramme booked.
Sunday I hope someone will organise some mischief for my birthday.
Next week I have a dentist appointment for a snapped tooth and then a preassessment meeting for a little surgery I need. I lead such a rich and varied life. I don’t think there are many hospital departments left that I haven’t been to. Lol.
Happy Burns Night for those celebrating Saturday and happy (inclusive of all) Australia Day for Sunday to those having fun down under and round the world.
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