Saturday 25 July 2020

Fighting cancer & covid

Hello everyone. I’m so sorry it’s been a while since I’ve put out a vlog/blog. I’ve been feeling crap! Well that’s not quite accurate. I had a couple of days, and I do mean just 2, where I felt the best I had in years and then the walls came tumbling down and I plunged backwards once more. I had a headache from hell. It was like a cactus and as growing out of my head. Then I had to dash to the loo one night and sit down very quickly. While I was “seated” I knew I was also going to throw up. I had a slight temp and I felt dreadful. Normally when I feel bad I just sit or lay very still. That makes things a bit more bearable. This time that strategy didn’t work. I was like death warmed up. I would have happily taken a large dose of sleeping tablets to knock me out till whatever was going on had worked it’s way out of my system. This intense feeling of being that unwell lasted a week. Then I gradually started feeling better but only back to my base level which is not brilliant. There has not been any further sign of those 2 good days. Sigh! It’s like torture. It’s almost like I had a small taste of my old life dangled in front of me, then it was gone. It seem cruel to me but it’s also something to aim for and maybe next time I’ll have 4 days. I just hope and pray one day I might get my old life back for good. One of the things I’ve been thinking about lately is the fuss that some people are making about wearing a mask. Please don’t think that your civil liberties are more important than my life. That’s what is really being said because if I got Covid I would likely die and so would many others like me. The problem is we are invisible amongst you. You can’t tell who the vulnerable people are around you. Please don’t put us at risk. No one would question visiting a baby ward and having to wear a mask. Well those of us with blood cancer or who have had bone marrow transplants have the immune systems of babies. We need to be protected. Please take your collective responsibility and help us carry on living. I hope you like this vlog which is dedicated to Claudia, Dave, Jean, Evie, Nicki and all fighting to stay alive during this tough time. Stay safe and take care Xx https://youtu.be/T_OOB7_7wLg