A surprising blood test

Last week I had hospital appointments on 4 days out of five days. Today I had two appointments and tomorrow I have two appointments. Yesterday I had one. So that’s 9 appointments in the last 2 weeks. It’s all go. I certainly know how to live. Lol. 

One of my results was abnormally high today and the consultant was much perplexed. I have a cholesterol of 10. Now bearing in mind that I haven’t eaten a meal since June that’s a bit surprising to say the least. I like to keep the medics on their toes but I’m not sure I like the idea of high cholesterol. Do any of my medical friends have any idea why this is a problem for me? It’s certainly not diet related. 

I’ve been thinking about all the ways my body let’s me know it’s not that happy and/or is showing signs of the struggle I’m engaged in. My big toenails are still in the process of healing after my nail fold surgery. My ankles still swell slightly but it has improved. My skin is very itchy and dry. I get pain in my muscles and joints especially my legs. I get horrible pains in my tummy that can wake me in the middle of the night and I often have an urgent need for the loo even if I’m out. I have a slightly sore throat from the NJ tube. I have sores in my mouth. I have dry eyes and dry mouth. I have regular headaches. I have zilch appetite and often feel sick. I can’t walk far. I sleep for around 10/11 hours. I am often pale to the point of translucent. I get breathless easily and I’m as deaf as a post without my hearing aids. Wow that’s some list. 

Despite all that, I struggle on and make the most of it. I’m really hoping to be able to catch up with friends and family and do some nice things. All I need is a few less hospital appointments so that I have the space needed to socialise. 

I’m very proud of Sam, Jen and who have all joined the bone marrow donor registry. As September is blood cancer awareness month I wanted to highlight the amazing gift that these 3 may give one day. Life is precious and to be able to save a life must be the ultimate buzz. I know Kaz is also looking into it. You are all stars. 

Please consider donating blood or you bone marrow. You never know who might need it next. #makebloodcancervisible #mds